Accelerating pediatric innovation
We are a RWD platform with a vision to supply everyday insights into pediatric speciality and rare diseases
Addressing the silent and growing problem
In the ever-evolving landscape of medical research and healthcare, the innovation gap in pediatrics has emerged as a pressing concern that demands immediate attention.
KidSights™ is focused on bridging this innovation gap with the world’s first real-world data (RWD) coalition of children’s specialty healthcare organizations focused on accelerating industry ideas, operational and clinical best-practices around brain, bone and movement areas.
Our vision is to unlock everyday insights by un-complicating information aggregation, access and analysis. To help accomplish this, we're creating a coaltion of like-minded data sharing partners and we've aligned with a distinctive technology partner that keeps things simple, safe and secure.
We serve Pharmaceutical, Device and Early-Stage companies
To address HEOR, R&D, Market Access, Safety and Clinical Trial requirements around Brain, Bone and Movement conditions
RWD Applied
Whether you're in an executive in the pharmaceutical or medical device category, real-world data (RWD) can enhance your work. Here’s a summary of how three key departments can leverage RWD to improve their performance.
Regulatory Affairs
RWD supports regulatory submissions by providing real-world evidence of a product’s safety and effectiveness, potentially expediting approval. It enhances the benefit-risk profile by complementing clinical trial data with real-world outcomes, boosting regulator confidence. Post-market surveillance and efficient reporting using RWD also ensure compliance and faster regulatory updates.
Commercial and Market Access (Marketing, Sales, Pricing)
RWD provides valuable insights into target populations, healthcare costs, and unmet needs, allowing for more effective marketing strategies. It helps justify product value to payers and insurers, improving pricing and reimbursement negotiations. Additionally, RWD is used for market segmentation, targeted sales efforts, and real-time tracking of product performance to adjust strategies accordingly.
Clinical Research & Development (R&D)
RWD helps speed up patient recruitment by using real-world data from EHRs to identify eligible clinical trial participants. It improves study design by analyzing treatment outcomes, optimizing clinical trial parameters. Additionally, RWD aids in early safety monitoring and guides informed decision-making throughout the R&D process.
Current data set
Updates are made as we add data partners
+2.5M
Patient Encounter Records
+9M
Diagnosis Code Count (ICD9/10)
+4M
Treatments Codes (CPT)
+188K
Unique Patients
+400
Specialty/Rare Conditions
Our unique data partnership model
- Like-minded pediatric speciality/rare disease hospitals (EHR data sets)
- Business incentives that keep our data fresh and data quality high
- EHR-agnositc integration
- Standard data models easily tailored and rapidly deployed
- Some of the best "small data" not easily found
- The ability to create collaboratory use and accelerator models
Rare and speciality conditions
Sample list in our data set
Cerebral Palsy
Duchenne
Scoliosis
Epilepsy
Rett Syndrome
Apert Syndrome
Scheuermann's Disease
Spina Bifida
Movement Disorders
Osteogenesis Imperfecta
Spinal Muscular Atrophy
Prader-Willi Syndrome
Legg-Calve-Perthes
Chiari Malformation
Charcot-Marie-Tooth Disease
Acute Flaccid Myelitis
Brain injuries
Craniosynostosis
Acquired Disorders
Hip Dysplasia
Unlocking potential
Children and young people with disabilities make up 10% of the global population, yet innovation in pediatric care often falls behind adult healthcare due to limited data access. To address this, KidSights™—a pioneering data consortium—aims to revolutionize care for children with disabilities, complex and rare conditions, and developmental differences through secure data sharing across global pediatric centers. Our consortium of data-sharing hospitals will focus on improving clinical practices, fueling industry innovations, and enhancing care for vulnerable children.
Key goals include:
- Helping commercial innovators to accelerate the development of specialized equipment and technology for children with disabilities and complex medical conditions;
- Employing the every-day use of pediatric disability data to create better treatments;
- Identifying gaps in care to help ensure children who need specialty care receive the care they need;
- Sharing best-practices across a global network dedicated to improving children's health outcomes.
Connect with us
To discuss your requirements